By Harvey Toews My journey with myositis started with something simple but strange: pain in my glutes. It didn’t seem like much at first, but it lingered, grew, and eventually…
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Myositis Awareness Month is Here!
Myositis Awareness Month is almost here—and TMA is ready to make it meaningful, informative, and inspiring! This month is about being seen and heard. It’s about lifting up the lived…
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GCOM Advances Myositis Research, Centering Patient Voices
The Global Conference on Myositis (GCOM) 2026, held March 23–26 in Lisbon, brought together researchers, clinicians, patient organizations, and people living with myositis from around the world. This was the…
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In Memoriam: Remembering Rare Disease Advocate Jenneh Rishe
We are deeply saddened by the loss of Jenneh Rishe—a powerful advocate, a fierce source of hope, and a beloved member of our chronic disease and myositis communities. Jenneh dedicated…
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Artificial Intelligence and the Future of Myositis Research and Care
By Rich DeAugustinis Late last month I had the honor of leading our TMA delegation with TMA Executive Director Paula Eichenbrenner at the Global Conference on Myositis (GCOM) in Lisbon,…
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